ALZHEIMERS – A Teaching

DORIS IS A REMINDER  OF THE NEED TO PRIORITISE THE CARE OF A GENERATION  WHO HAVE DEMONSTRATED SERVICE TO THEIR FAMILY AND COMMUNITIES.

Like many of her generation Doris learned about resilience early in life, it imbued her with an indomitable spirit.  Born in 1923, in the north of England, her teenage years were marred by war but she met and married a Canadian soldier stationed in England. At the end of the war when the Allied forces had returned home she travelled to Canada with their nine month old daughter to begin a new life. Sadly like so many war brides of the  time her hopes were dashed when the marriage quickly ended. Doris made the long lonely journey home to England to begin, instead, life as a single mother but later remarried and a second daughter was born.  Like most people she knew Doris worked as an operative in the Lancashire cotton mills, from the age of 15 until her early forties when the cotton workers lung disease, byssinosis forced her to seek other employment.

Doris used to say the ‘When God closes a door he opens a window’ and this proved to be a crossroads of choice for her. Lacking qualifications, she applied for work at the local hospital as a cleaner,  progressing to Ward Orderly before training as an Anaesthetic nurse, a post she held for some years. Doris worked  with the prestigious pioneering team who became world famous when they announced the birth of the first ‘test tube baby,’ Louise Brown, the fore runner of today’s IVF.  At the age of 50 Doris began a three-year course in midwifery training, studied and passed her finals to become a fully qualified midwife. After several years as a staff nurse she became a ward sister on the premature Care ICU, a job she was totally dedicated to.

Following her retirement Doris remained active, enjoying holidays abroad with her husband before his passing. The family expected her to find widowhood difficult, however, she gained a new lease of life. As a gifted writer, she wrote her autobiography which was published. As the family matriarch she helped raise her grandchildren and great grandchildren and finally a great great grandchild, keeping a daily journal and recording her daily life as a doting grandma, in prose.

                                                        On the Corner

I stand on the corner each day, wet or fine, and watch for that lovely great grandson of mine. He comes down the road with a smile on his face, on his dad’s shoulders, they set quite a pace but daddy must set off again, what a race. So off we go now, my great grandson and me to my house for breakfast and Children’s TV.  Ms Mallet, short stories and Sesame Street. Then shopping around, there’s always a treat, the best is the Roundabout, his favourite ride, he goes round and round, all the cars he has tried. Now it’s home time… he gives me a kiss. Back home to mummy, he’s waited for this. So I’m off on the bus with this tired boy of mine but I’ll be on the corner each day, wet or fine.

At the age of 82, it became evident that Doris was experiencing memory problems, she was diagnosed with Alzheimers at the age of 86 and made the transition from independent living to residential care. Doris was supported by a team of dedicated holistic therapists pioneering alternative approaches to health care by the Living Memory Research Trust and was delighted to take part in a video project to increase medical and community awareness. Doris unexpectedly became the teacher providing a unique client perspective. Project workers described how she had enriched their knowledge: “She helped me to know what it felt like to lose your memory, your ability to communicate and your independence because of Alzheimer’s.”

An articulate woman, when asked  to describe what  it feels like when you can’t remember, she replied. “It’s like you remember a little bit and then it stops and then it’s like another bit of film interrupts it, then you don’t know where you are. I finish up not understanding what I am seeing. It feels like shutting off. It’s like a blankness that you can’t see through. Like a door that won’t open for you.”   She described her feelings when this happens:  “ I feel a bit helpless. I can go on struggling and struggling with it but if you let go of it, sit down, have a cup of tea and let 15 minutes pass, then it’s gone and I’m back to normal again.”   Her advice was: “Leave me to struggle at the beginning with it and that will help me pull my brain together. Don’t you say anything until I ask you. The condition gets bigger and bigger if someone interrupts you. “ Asked what she found most difficult she said: “The only thing that agitates me with people is that they don’t take any notice of what you’re saying or they look like they don’t believe what you’re saying, as though you are romancing or something. Then it makes me shut up because it’s embarrassing. “

Doris eagerly participated in a series of videos as part of a therapist training programme, ignoring the camera and expressing herself animatedly as she took part in a sensory programme using aromatic oils, sound, colour and music.  She appreciated the opportunity to become a teacher and somewhat  assertively encouraged interviewers to  “go home and make yourself some notes about the questions you want to ask next time”. Even after experiencing a stroke, Doris was happy to continue with the video project despite her increasing disability and memory loss.

She derived great pleasure in observing the rowan tree outside her window, observing the seasonal changes and watching the birds. Inevitably her illness progressed, yet more slowly than expected . After seven years Doris remained almost fully independent and mobile, causing the consultant neurologist to question whether the initial diagnosis had been correct. (confirmed by later brain scans in the  final stages of her illness). The self help Living Memory Alzheimers project (named Doris’s Day in her honour) has since  been used effectively by families and and carers and has been incorporated into residential therapy  programmes.

Doris passed away at the age of 93 and we planted a Rowan tree in remembrance. The Living Memory therapist team gave this fitting tribute:  “Our time with Doris became much more than a therapy session, she was our teacher, surrogate mother, grandmother and friend and gave much more healing than she received, all our lives were enriched through our connection to her. We loved her dearly and continue the work we began with her to ensure that her legacy lives on to give hope and practical advice to carers doing their best for those with this debilitating disease.  Thank you Doris

 

ALZHEIMERS – A Spiritual Perspective of ‘The Long Goodbye’

The day I went to visit my mother and found her sprinkling sugar on a plate of mashed potatoes as she told me she had made me my favourite custard tart for tea, was a turning point. I was forced to accept that the mild confusion and increasing memory loss of recent years had become something else. We had reached a point of no return. An independent woman who had shown great resilience throughout her life was now dependent upon us, her family and sadly it was no longer possible to ensure her safety in her own home.

In the months which followed I sought help from every available source, becoming increasingly aware that our remaining time together to share any meaningful conversation was slipping away. I resolved to use it well. Doris had overcome major challenges throughout her life, writing a fascinating autobiography to record her war time memories and nursing experiences.   We talked for hours as she repeated the well worn stories of her teenage years,  the ‘big band’ sounds of Glenn Miller and the weekly dances, the sound of sirens and the hurried rush through the streets to air raid shelters.  Tears rolled down her cheeks as she recalled the friends in khaki who never returned when the war ended; on one occasion she looked around the room and said; ‘It’s nice to see them again’ When I asked who she was referring to she gave the names of three soldiers, friends who had been lost. I remembered she had told me their story many years ago.  ‘They come now and again‘ she said ‘usually round Poppy Day’.  I had no doubt that she could see her old friends and thank fully did not feel the need to contradict her in an attempt to stop the ‘hallucination’. Continue reading

‘HEART IN A BOX’ Heart Transplant Memory

With the news that an Australian team of surgeons have successfully
transplanted dead hearts as opposed to beating hearts we contemplate the skills and dedication which made this possible while pausing to consider the deeper spiritual implications.This medical breakthrough is hailed as the solution, at least in part to resolving the dilemma of the patients who are awaiting a donor heart. Organ transplant is now commonplace, an estimated 5,000 heart transplants are carried out annually around the world yet it is estimated that some 50,000 people are candidates for transplantation. The availability of donor hearts has hit a plateau despite intensive promotional campaigns to raise public awareness. At a time when legislation is proposed which would assume donor consent for anyone who has not explicitly made their opposition to organ donation known, the question must be asked: Why do most people choose not to carry a donor card? Continue reading

ORGAN TRANSPLANT MEMORY – Soul Stories

The following stories are heart warming in the truest sense. Perhaps it is surprising to see how often the recipients intuitively acknowledge a spiritual connection from other times and places, even when this is not intellectually understood. A reminder that the soul is eternal and that we all journey together.

Eighteen year old Paul was killed in an automobile accident. He had decided at the age of twelve to donate his organs at his death. Paul’s father described his son as a poet and a musician; it took a year before his parents could clear out his room, when they did they found a book of poems which they never showed anyone, it spoke of him having seen his own sudden death. Paul had also written a song he titled; “Danny, My heart is yours”. The lyrics described how he felt he was destined to die and give his heart to someone. Continue reading

LOSS: Releasing the energetic ties that bind

BONDS OR BONDAGE?  Life changing events such as loss and separation, divorce, bereavement etc are some of the greatest challenges life can bring to us.

Clients describe this as an actual physical pain, or dull heaviness within the body. This is real and not imaginary, it is the slowing of the subtle energy bodies, the freezing of thoughts and emotions and ultimately the life force itself. Symptoms may be occasional, intermittent or constant and debilitating; they include tiredness, heaviness, headaches, blurred vision, nausea, and  non specific aches and pains. Continue reading